I miss the sun.And being self-sufficient. I HATE relying on other people, my patience and personality do not do well when I can't just get things done as I need/want them to be. My biggest problem with that right now is that I just don't have the energy to do much of anything beyond basics of tidying up and cooking. I used to get so much of my energy from the sun, but it has been cold & grey & snowy here all week.
Yesterday was my MRI follow-up appointment. It was almost funny because the Dr who had insisted that I should have someone with me at the last appointment barely came in the room this time. Instead, an intern ran through all of the typical neuro-tests, provided a quick report of the MRI, and didn't answer any questions directly. Basically what I gathered is that there is no regrowth yet, but more fluid build-up (could explain the sloshing in my head! LOL) and that I am all good to start the heavy-duty doses of chemo. 5/28 days for 12 cycles. One of the most frustrating parts of the morning was when we went to pick up the prescriptions, after telling them multiple times that I do not currently have any drug coverage (except for the chemo pills which are thankfully covered under a special program) they still prescribed a $500 stomach pill. It only took over an hour to contact a doctor in the clinic who was willing to change it back to the generic form of Stemotil that I had been taking with the chemo in Calgary. Listening skills are apparently not required for med students/staff, and just added to my impatience - even though it was my sister missing half a day of work for no apparent reason that was really bothering me the most. Frustrating!
We decided that running a Mon-Fri schedule for the chemo would be best as the kids are in school and it will hopefully not be as rough as it would be if I were to be chasing them around and travelling while doing treatments. This way I can at least rest if needed and not worry so much about playing up to the 'normal'that seems to be expected. Plus that scheduleit will let me go have some fun in Muskoka this weekend with family - celebrating my niece's 3rd birthday and hopefully getting the toboggans out for awhile :) Planning a bonfire with the kidlets, so looking forward to a few good days!
I hope your chemo goes well! I think a Monday-through-Friday schedule is a great idea with school taking a big chunk of the kid's time. It is a shame, though, that you had an intern who would not directly answer questions, that is quite annoying. Nonetheless, I hope you enjoy your upcoming bonfire with the family—have fun!
ReplyDeleteKacey @ Glendale MRI